Shannon Joy

View Original

Cheers To Answers

Let's celebrate together!!!

Some of you have been following my health journey over the last several years and I thought today would be a good time to share an update.

You may or may not realize that I've been living on 5-10 waking hours each day, occasionally getting 12 in on a REALLY good day.

For almost six years, I've been meticulously attempting to account for every "spoon" to make sure I could at least get the priorities done (look up spoon theory if you don't know what I'm talking about).

If my kids had a school function, I knew it would be a choice between that and being productive. It meant they had to cook their own dinner two or more times every week. It meant them growing up way faster than I ever would have liked or imagined. It meant the only mom they've known was the exhausted mom who couldn't play Wonder Woman.

If a friend was having an event, that meant I needed to rest during the day if I wanted to attend. If I had a deadline for work, it meant sleeping instead of spending time with my kids.

It meant missing out on a lot of things I really wanted to do and it meant that there was no such thing as balance.

And it took a toll on my mental health, my physical health, my relationships, my work... And pretty much every area of my life.

But I managed. I planned and processed and tried to do whatever I could to the best of my ability. All while hunting for more answers. The doctors blamed it on the brain injury and the Lyme Disease and mental health issues. And I was so tired, it was really hard to argue.

So, back to this week and why we are celebrating...

I was officially diagnosed with narcolepsy today. It could have been genetic, it could have been the TBI, or the Lyme Disease. There are studies on all of the above… but the IMPORTANT part is that I know now and it’s TREATABLE.

So, cheers to a new chapter! Cheers to longer days and shorter nights, to spending more time with the people I love, and to increasing my productivity to Wonder Woman once again!

Thank you all for supporting me on this journey and helping me make my dreams a reality.

Sending all my love and a sprinkle of joy,

Shannon